http://www.newsshopper.co.uk/news/northkent/4270063.FARNINGHAM__Mum_attends_autistic_rally/
FARNINGHAM: Mum attends autistic rally
12:08pm Monday 6th April 2009
A MUM with an autistic son has attended a march to help raise awareness of the
condition.
Elaine Butler of London Road, Farningham, attended the Open Your Eyes to Autism
rally which took place on March 28 in London.
Mrs Butler’s 19-year-old son, Matthew, was diagnosed with the condition when he
was just 18 months old.
Matthew developed autism after having an MMR jab.
Around 2,000 people attended the rally which aimed to improve services such as
education, for autistic adults and children.
Mrs Butler said: “It was a truly memorable occasion, which energised so many
people and raised an essential awareness to empower those whose lives have been
blighted by a condition that now affects so many."
Local Mum takes to Trafalgar Square podium in support of World Autism Awareness Day
02 April 2009
Elaine Butler from Farningham supported an enormously successful Rally which
took place in London last Saturday, 28th March 2009 and called for everyone to
‘Open Your Eyes to Autism’ [1].
In their thousands Marchers were led by traditional Bagpipers along the Victoria
Embankment, Whitehall on route to Trafalgar Square, with road closures in place
and a very supportive Police presence.
This demonstration of support of all children and adults with autism throughout
the UK was a parents initiative and exceptionally well organised for the maximum
impact it achieved.
The crowds paused twice along the way to deliver Mandates which were formally
received by the Department of Health and Downing Street. A delegation of young
suffers and their Carers were warmly greeted at Downing Street by the Chancellor
of the Exchequer Alastair Darling and his Wife Maggie.
On rejoining the March they were heartened by this interest and concern shown to
the plight of so many, previously thought to be 1 in 100 but the latest study,
by academics at Cambridge University’s respected Autism Research Centre confirms
it to 1 in 60 children [2] and on the basis of a ratio of 4 boys to 1 girl that
equates to 1 in every 38 boys affected.
The atmosphere was energised by the action that it is hoped will now come from
the involvement of the Chancellor & his Wife, who listened carefully to how
badly these sufferers had been let down by empty promises of politicians elected
to represent what is becoming a significant proportion of the future electorate.
Numbers swelled as everyone congregated at Trafalgar Square where Speakers, who
ranged from Experts to Parents covered a variety of topics to inspire active
crowd participation, despite the coldness of the showery and windy weather.
Elaine was delighted to be asked to speak on the Transition from childhood to
adulthood when life years dictate, regardless that this bears no resemblance to
the mentality of sufferers or the fact that they remain a child in an adult’s
body.
Sharing the experiences of herself and her husband, Elaine reflected on the last
two years since they started on the transition path for their son Matthew who is
now 19 years old. Although Matthew left school last July almost nine months ago,
he has yet to be able to take up the placement that they found to be the most
appropriate to suit his specific needs.
To their credit Connexions has very helpful throughout but unfortunately this
has not been able to prevent the ping-ponging that KCC has ensured between
themselves and the Learning & Skills Council, as to who will accept statutory
responsibility for funding this placement.
Elaine recalls what she describes as the thirteen month nightmare that she and
her husband endured as they pleaded with KCC to listen to them and to help them
to avoid being forced into taking legal action. This was not unreasonable as all
other learners at that same placement are funded by their Local Authorities,
therefore KCC refusal to do this amounts to Matthew being another victim of a
Postcode Lottery.
As they continued to be ignored and their please were rejected Elaine and her
husband had no alternative but to pursue legal representation and with the use
of Legal Aid they have been embroiled in this for the last twelve months, whilst
continuing to lovingly care for their brain damaged son 24/7, who remains at
home with them.
Matthew was diagnosed to have Pervasive Development Disorder, having suffered an
immediate and extreme reaction to the MMR vaccine he was given over 18 years
ago, when he was only 18 months old. Elaine and her husband are convinced that
vaccine damage is being dismissed, as children like Matthew who had an adverse
reaction are being denied investigation and that money is being wasted on
studies that do not involve these children.
The World Autism Awareness Day on 02 April 2009 will focus attention on the ever
increasing numbers now diagnosed to be on the Autism Spectrum Disorder, which is
at epidemic proportions and far exceeds the numbers of children that suffer from
all other learning disabilities put together.
Elaine and her husband are far from anti-vaccine, as this would contradict the
responsible way in which they vaccinated Matthew, they do however believe that
safer and single vaccines are far less likely to overload a vulnerable young
body at a crucial stage of development. They also appeal for a more accurate and
correct diagnosis for their son and others affected in this way, to not place
them upon the Autism Spectrum Disorder for public friendly purposes, as this
only overinflates those figures and ignores the true cause of this disability to
prevent appropriate treatment.
The Rally served the purpose to bring people together and it was a lively and
memorable event, which although attracted numbers in the thousands, it paid
great respect to the thousands more unable to attend because of coping and
caring for someone with Autism, the very heart of what this gathering was all
about.
[1]
http://www.openyoureyestoautism.com
[2]
http://www.dailymail.co.uk/news/article-1163606/One-child-60-suffers-form-autism.html
8:11pm Mon 6 Apr 09
The high-pitched scream persisted as the urabe Mumps strain shot his brain to pieces and he lost all senses as a result, this remains as vivid as the green gunge he discharged and the projectile vomiting that occurred in the instant destruction of his gut from the live Measles virus that poisoned his system from within, not forgetting how the Rubella virus attacked his joints and limbs before he lapsed into unconsciousness and was given the last rites.
My previously very healthy, happy and perfect precious baby came through but severely brain damaged and in a vegetative state. If the emergency services in attendance did not dispute an immediate and extreme reaction to the MMR vaccine, then why would you? What purpose is there to be served by you doing this? Maybe you have a particular competing interest that we do not know about but even this does not allow you to undermine the horror of what we went through and have gone through since that dreaded day.
Please do not mock the life sentence that has been inflicted upon our son and us as his loving family, simply because of a need for you to Open Your Eyes to the wealth of evidence that does support the link. To choose not to see is one thing but to express such a regrettable view will only ensure that this greatest public health disaster of all times continues and with 1 in 38 boys now affected, how much more of a public health risk can you get than that!