My favourite bit of Sunday is when I finally get to sneak away to a
quiet corner of our house and settle down to read my
Observer. Last week
however it ended up being the unsettling bit of my weekend. When I saw
the headline I had to check that I hadn't picked up the
Mail on Sunday by mistake –
but there it was under the Observer masthead: "New
health fears over big surge in autism. Questions over triple jab for
children". This front page splash linking a rise in autism with the
joint
Measles,
Mumps and
Rubella (MMR)
vaccine coincided
with a two page
exclusive interview on the inside pages with
Dr Andrew
Wakefield, architect of the MMR scare, who is due before the
General Medical Council (GMC)
Fitness to Practise Panel this week to face charges of misconduct in
relation to his research on MMR.
"This had better be good", I thought as I hungrily devoured the piece.
The article was based on a leak of unpublished research into the rising
levels of
autism. The top line was that as many as one in 58 children may have
some form of the condition - much higher than the current highest
estimate of one in 100.
You would think that was already a shocking enough story – but then in
paragraph three the reason for the headline becomes clear. Apparently
two of the seven researchers privately believe that the rise may be
connected to the MMR vaccine. The claim is elaborated on in the fourth
paragraph where the two researchers are named as
Dr Carol Stott
and
Dr Fiona Scott. Though the paper made it clear that
Professor Simon Baron-Cohen, leader of the
research group and
one of Europe's most respected autism experts, does not accept the link,
alarmingly almost ten years after Andrew Wakefield sparked off a
frenzied debate
over a link between MMR and autism, the Observer's front page was
suggesting that there is still a serious dispute amongst leading experts
as to whether he was right. Predictably several papers repeated the MMR
allegations the next day and countless columnists, including
James Le Fanu and
Peter Hitchins have cited the Observer piece as evidence that the
MMR autism row is still alive and well.
One of the challenges for the
Science Media Centre
(SMC) was what to do about it. We were set up in the wake of media
furores over issues like MMR and we know that poor journalism on public
health is our territory. However we also know that the SMC philosophy
(the media will 'do' science better when scientists 'do' media better)
was a reaction against the culture of complaint within science which
often saw top scientists complaining privately about coverage rather
than pro-actively engaging with the story.
With this in mind, the SMC reacted to the article primarily by
coordinating a
joint media statement by 14 institutions involved with child health
and vaccination to back the safety of the jab which we issued to
coincide with the GMC hearing. However I did also send a note to
Denis Campbell, the journalist who wrote the article and a friendly
contact of ours, to make sure he knew that the SMC was unable to defend
the piece to the angry scientists who were contacting us. The result was
an invitation to meet with him, the readers' editor and a variety of
other Observer news editors at their offices. So, with two leading MMR
experts at my side, I went to highlight the concerns.
One of the main points that I made at that meeting was my belief that in
science reporting the rule of thumb should be that the more outrageous
the claim the more the need for the best standards of journalism – a
rule which is often interpreted in exactly the opposite way by
journalists hungry for a sensational scoop. I then argued that I would
take this rule even further in this peculiarly sensitive and important
public health issue. The claim that MMR may cause autism, made by Dr
Andrew Wakefield in 1998, produced one of the biggest rows in public
health for decades and millions of pounds of public money have been
spent on scientific studies researching the evidence for a link. Not a
single reputable study has found any and just last year the SMC
coordinated a
joint appeal from many of those involved in child health that the
media now draw a line under this row unless and until it has compelling
new evidence. Many autism experts have echoed this call and issued their
own plea for resources to move from the obsession with MMR to
investigating the many other possible causes - including genetics,
environmental factors and so on.
Given this context, I would argue that the bar for evidence in any
newspaper splashing on a link between MMR and autism needs to be much
higher than for other stories. In my view the Observer really needed to
have produced stunning evidence of a link between MMR and autism to
justify re-running this particular scare story.
Stunning evidence it wasn’t. The two researchers cited are experts in
autism but not in MMR and the study they were involved with was nothing
to do with MMR. In fact it had nothing whatsoever to do with what causes
autism at all - it simply looked into prevalence of autism. As such, the
authors private views on MMR are neither significant in terms of public
health or in any way relevant to the Observer's story. In fact I'm
tempted to say that their private views as to what causes autism are no
more significant than my mum's view - something on which it seems Dr
Fiona Scott agrees: when contacted the following day by the
Telegraph she was not prepared to repeat any private views in public
and instead voiced her support for MMR and her decision to get her
daughter vaccinated.
One of the news editors pointed out that that any article reporting a
dramatic rise in autism would prompt readers to turn to the question of
MMR. I accept that but the way to answer those readers' questions is
with an accurate summary of the balance of evidence against any link.
Instead, any Observer reader whose mind turned to the question "is MMR
to blame?" was provided with the answer that two out of seven experts
believe it is and one believes it is not - a reckless distortion of the
real balance of views within the scientific community.
Ironically, if this piece had appeared in certain other campaigning
papers, no would one would even bothered complaining. The fact that it
was in the Observer, which has a reputation for excellent science and
health coverage, made it worth challenging. The fact that senior editors
invited us in and the acknowledgement by the readers' editor Stephen
Pritchard the following week that the MMR allegations should not have
been included in the autism story reassure me that the Observer have
seriously reflected on the scientific community's concerns and their
responsibilities as journalists - that should be welcomed.